Last Tuesday Cameron and I met with the Fetal Health team at Children's Mercy. We started the day off with a two hour ultrasound where they measured Clark's bones and tracked his movements! It was wonderful to see our little man! We also met with the Children's Mercy fetal surgeon, Dr. Iqbal, who showed us Clark's opening on his back and went over what the surgery would look like. Cameron and I got to meet all of the nurses, the anesthesiologist for the cesarean section, and our new high risk OB-GYN who will deliver Clark! They are such a wonderful, encouraging team and we are so lucky to be working with the best.
When we met with the OB-GYN, Dr. Jodicke, he had some news that we really were not expecting. Dr. Jodicke told us that the full results form the amniocentesis were finally in and there was a concern with Clark's Y chromosome. When the genetics team took a closer look at Clark's cells, they noticed that in half of his cells the Y chromosome was elongated. This means that there is extra 'material' attached to the end of his Y chromosome, but at the time they did not know if this extra material was just extra Y chromosome, which is not a health concern, or if it was material from a different chromosome, which would result in Clark having a syndrome. As you can imagine, this was quite shocking and we weren't really sure how to handle this information. We then met with a genetics counselor who educated us on how they run the test to see what this material was and that it could take until Friday to have the results.
After a long week of waiting, Friday rolled around! We talked to the genetics counselor and it turns out that the extra material on his Y chromosome is just extra Y chromosome, PRAISE GOD! We were so excited to hear this news! The fetal team sent the rest of our file to Colorado and we should hear Monday if they have made a decision and when we will fly out!
Praises:
- We are so thankful that our little man has very strong legs and feet! It is a HUGE blessing that his legs are moving and we pray that they will continue to kick away!
- We are so blessed to have the Children's Mercy fetal team standing behind us and encouraging us throughout this whole process.
-We are so, so thankful that our little man's chromosomes are normal and that we don't have any health concerns regarding his genes!
-We are so very thankful that I will be able to come home a few weeks after the surgery! Usually, if you are having an in utero surgery, you have to stay in the city where you had the in utero surgery until you deliver but Children's Mercy has the ability to bring me home to recuperate and deliver Clark here!
Prayers
-We continue to ask for prayer that we are accepted by the Colorado fetal team for the surgery.
-We ask for prayers that Clark's legs keep moving!
Much love, Cyrena
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